Graylon Myles Posey was born on Sept. 30, 2015 with a life-threatening condition called pulmonary hypertension, believed to be caused by pneumonia while in-utero. Shortly after his birth at Aiken Regional Medical Center in Aiken, South Carolina, he was rushed by ambulance to the Children's Hospital in Columbia, South Carolina. He remained there for one night when we received a phone call that no parent ever wants to get. We were told if they did not immediately get him to the MUSC Hospital in Charleston, South Carolina that he would not survive. They were not able to airlift him because of the terrible storm caused from the hurricane off the coast, so Graylon had to take another two-hour ambulance ride that evening.
When he got to Charleston, they were able to get him stabilized, but that next day he took a turn for the worse. His vitals went all crazy and their last effort was to get him hooked up to the ECMO machine (heart/lung bypass surgery). He was on ECMO for five days and they decided that it was time for them to do testing to see if he would be able to come off ECMO. The test went so well that even the doctors were surprised, and they were able to remove him from it that day. Once off the ECMO machine, they put him on the ventilator, and after a few days, his numbers were so good they were able to put him on a CPAP breathing machine. He remained on a CPAP for about a week and then went on a nasal cannula. Graylon came down with rhinovirus and was put back on the CPAP, but after about 10 days he was able to come off of that and breathe normal air. He then began working on feeding and taking a bottle. He did amazingly well with that and it wasn't long before we were able to come home!
Graylon spent a total of 32 days in the NICU at MUSC and were beyond thankful for the Ronald McDonald House of Charleston. I honestly don't know what we would have done without it. With our hometown being over three hours away from the hospital it would've been nearly impossible for us to drive back and forth to be with our son. The Ronald McDonald House not only gave us a very nice place to stay, but it provided us with support during one of the hardest times in our life. The staff members were all so welcoming and went above and beyond and their smiling faces always made your day a little brighter. I never thought I would give birth to a child who was in very critical condition, especially after having such an easy pregnancy with no issues, but sometimes things happen and I'm forever grateful and humbled by all the help and support we received from the Ronald McDonald House.
With Graylon only being two months old now, the road ahead of us is unknown as to whether he will have any issues in the future from his extensive medical history. We are just asking everyone for continuous prayers for Graylon. We believe God has blessed us and all the glory be to him! We are so thankful to have him in our lives today. Gray will have to follow up periodically with high risk doctors in Charleston to rule out any learning disabilities or future health problems and he goes weekly to occupational and physical therapy appointments here in Aiken. He continues to make amazing progress and he's nothing short of a miracle baby!
Give Families Hope
You can give families the support and comfort they need away from home by making a gift to Ronald McDonald House of Charleston. Contact Alix Tew at alix@rmhcharleston.org or 843-723-7957 Ext. 303.